Understanding the Journey, a Parent's guide to DIPG

This 368-page comprehensive resource is a guide for families coping with an especially difficult diagnosis: diffuse intrinsic pontine glioma (DIPG).

Chapters are written by pediatric neuro-oncology experts and cover all aspects of treating a child with a DIPG, including: diagnosis, imaging, pontine function and anatomy, steroid treatment, radiation therapy, radiosensitizers, surgery, chemotherapy and biologics. Research chapters focused on animal models of DIPG, stem cell research, vaccine research, convection enhanced delivery and genomic research provide hope for a brighter future. 

In addition to digestible breakdowns of medical information, this book also contains helpful chapters on communication, caring for the child at home, and practical advice.  The final chapters on organ and tissue donation as well as integrating palliative care answer the difficult questions that families ask at their child's end of life.

The book includes 164 parent stories that provide personal insight to the DIPG journey.

Edited by Ruth I Hoffman, MPH

You can read this and other ACCO books online at our Digital Library.